I am at my wits end with the constant lightheadedness. I can’t go anymore. I am praying for some advice.

Wanting to keep the story short as I have posted all over Reddit and different groups. Essentially I have been diagnosed with dysautonomia for 8 months now and my very first symptom was light headedness and it’s the one that to this day has staid and is debilitating. Everything that I read that’s fine is more scented around dizziness and vertigo.

I would love to hear of anyone that experiences lightheadedness all the time. I am never dizzy nothing ever spins. It’s just a feeling of my head floating, whoozy, not coordinated, my head just feels so faint and hazy, like I have a film over my brain. It also affects my vision depending how bad it is. The only way I can describe it is if any of You smelt petrol or nail polish remover that’s right up close to your nose and how you get light headed for a second… that’s how I feel CONSTANTLY.

The thing is, though I have it all day everyday and it only goes away when I’m laying down. When I wake up in the morning and get out of bed and start to brush my hair, teeth after about 15 minutes it comes on and doesn’t go away until I lay down again. It literally just feels like I’m not getting enough blood to my brain. I have been given the usual POTS remedies, increased electrolytes, compression, hydration.

I have gone to a dizzy centre and the lady could not help me because it’s not vestibular. I have tried acupuncture, cupping on my neck done countless MRIs and blood tests with NDA.

I don’t want to go into a rant at how much this has affected my whole life, but I just can’t keep going on like this. I am praying for anyone I am praying for anyone support or helps support or help